Links

  Palliative Care/Hospice
 

 

 

 

 

American Academy of Hospice and Palliative Medicine
Originally organized as the Academy of Hospice Physicians in 1988, the American Academy of Hospice and Palliative Medicine (AAHPM) is the only organization in the United States for physicians dedicated to the advancement of hospice/palliative medicine, its practice, research and education. AAHPM members are physicians from many medical specialties who are committed to furthering and fostering the practice of hospice/palliative care for the terminally ill and their families. American Academy of Hospice and Palliative Medicine members believe that this organization is the beginning of an organized discipline in the United States devoted to the special areas of palliative care and the management of terminal illness.
http://www.aahpm.org

ABCD: Americans for Better Care of the Dying
ABCD is a non-profit public charity dedicated to social, professional, and policy reform aimed to improve the care system for patients with serious illness, and their families. ABCD is a coalition of citizens and professionals united to ensure that public policy addresses the needs of individuals and families coping with a fatal illness. ABCD will provide an information network, encouraging and supporting public involvement in correcting system deficiencies. ABCD seeks to harness the strength of many concerned people to speak with a shared voice.
http://www.abcd-caring.com

American Pain Foundation
American Pain Foundation is an independent nonprofit organization serving people with pain through information, education and advocacy, including practical information about pain, resources/links and news about federal/regulatory pain management issues.
www.painfoundation.org

American Society for the Advancement of Palliative Care
ASAP Care is a personal effort to help expedite the reform of terminal health care practice.
http://www.asap-care.com

Approaching Death
: Improving Care at the End of Life: Institute of Medicine, Division of Health Care Services site.
http://www2.nas.edu/hcs/21da.html

The Association for Death Education and Counseling
http://www.adec.org

Bereavement and Hospice Support Netline
: Public service directory of bereavement support groups.
http://www.ubalt.edu/www/bereavement

Boston Globe: "Choosing A Good Death"
: Stories, resources, discussion forum, information about hospice, etc.
http://www.boston.com/globe/hospice.series.htm

Center to Improve Care of the Dying
The Center to Improve Care of the Dying (CICD) was founded in the belief that life under the shadow of death can be rewarding, comfortable, and meaningful for almost all persons--but achieving that goal requires real change in the care system. CICD is a unique, interdisciplinary team of committed individuals, engaged in research, public advocacy, and education activities to improve the care of the dying and their families.
http://www.gwu.edu/~cicd

Choice in Dying
Choice in Dying, the inventor of living wills in 1967, is dedicated to fostering communication about complex end-of-life decisions. The nonprofit organization provides advance directives, counsels patients and families, trains professionals, advocates for improved laws, and offers a range of publications and services.
http://www.echonyc.com/~choice/

Cochrane Collaboration
: Reviews of research evidence about the effects of health care.
http://hiru.mcmaster.ca/cochrane

Compassion in Dying
www.CompassionInDying.org

Death, Dying and Grief Resources
This web site represents a large and comprehensive collection of Internet resources with a holistic perspective - one that would be helpful to anyone seeking a wider vision and understanding of the death process.
http://www.katsden.com/webster/index.html

Death NET
DeathNET is an international archive specializing in all aspects of death and dying with a sincere respect for every point of view. DeathNET is the result of hundreds of hours of volunteer work, gathering together a wide range of materials related to the legal, moral, medical, historical and cultural aspects of human mortality.
http://www.rights.org/~deathnet/open.html

Dying Well
Defining Wellness through the 'End of Life': Resources for patients and families facing life-limiting illness.
http://www.dyingwell.com/

Eldercare Web
Welcome to Eldercare Web, one of the oldest and most comprehensive eldercare gateways on the World Wide Web! It's a collection of hundreds of reviewed links to on-line information about health, financing, housing, aging, and other issues related to the care of the frail elderly. This Web is designed for caregivers, family, healthcare providers, and professional advisors of elderly people with care needs.
http://www.elderweb.com/index.shtml

Elizabeth Kubler Ross, M.D., "On Death and Dying"
Elisabeth Kubler-Ross, M.D. is one of a kind. She has been widely recognized as one of the foremost authorities in the field of death, dying and transition for over 20 years. It might well be said that she invented this field as an area of legitimate discourse in the medical community. Her now-classic first book, On Death and Dying, is today considered the master text on the subject, and is required reading in most major medical and nursing schools and graduate schools of psychiatry and theology.
http://www.doubleclickd.com/kubler.html

Growth House
: Monthly guide to Best of the Net sites for life-threatening illness and bereavement.
http://www.growthhouse.org

Hemlock Society USA and PRO-USA
This is a critical time for all those who support the rights of the terminally ill to choose death with dignity who support personal control and autonomy in end-of-life decisions, and who believe that laws should allow a terminally ill person the choice of medical assistance in hastening their death. Through PRO-USA the Hemlock Society is attempting to achieve legal change in every state.
http://www.hemlock.org/hemlock/index.html

Home Care Nurse
http://junior.apk.net/~nurse/

Hospice Foundation of America
: Information about hospices and hospice care.
http://www.hospicefoundation.org

Hospice Hands
: Articles, chatroom, links to related sites.
http://hospice-cares.com

Hospice Web
: Hospice links, information, search for hospice in your area.
http://www.teleport.com/~hospice/index.htm

Last Acts
Last Acts is a call-to-action campaign dedicated to improving end-of-life care through the sharing of ideas and solutions by professional care givers, institutions and individuals. The Last Acts Web site includes news updates, a resource center and reports on palliative care, family needs, service providers, education and training, financing and the workplace.
http://www.lastacts.org

Medical College of Wisconsin Palliative Care Program
The Palliative Medicine Program is committed to improving care for the dying in America through the development, implementation and dissemination of innovative education and clinical care programs.
http://www.mcw.edu/pallmed/

National Association for Home Care:
http://www.nahc.org

National Conference of State Legislatures
: Legislation related to end-of-life issues in states.
http://www.ncsl.org/programs/pubs/endoflife.htm

Not Dead Yet
Americans with Disabilities don't want your pity or your lethal mercy. We want freedom. We want LIFE.
http://acils.com/NotDeadYet/

Open Society Institute: Project on Death in America
: Death, dying, and grief resources. Topics include Hospice and Home Care, Death in Arts/Literature and Stories, Cemeteries, Memorials and Burials, and much more.
http://www.soros.org/death.html

Palliative Medicine Program
: Medical College of Wisconsin
http://www.mcw.edu/pallmed

Oversight Hearing:
"Assisted Suicide in the United States" -- April 29, 1996

World Wide Web homepage of the House Committee on the Judiciary. This site will keep you informed about Judiciary Committee activities and other important issues facing our nation.
http://www.house.gov/judiciary/2.htm

Pain, Palliative and Supportive Care:
The Palliative Medicine Program: Provides a variety of information and educational materials about pain management and palliative care.
http://www.jr2.ox.uk/cochrane

"When Death is Sought
Assisted Suicide and Euthanasia in the Medical Context"

In May 1994, the New York State Task Force on Life and the Law published a 217 page report titled "When Death Is Sought: Assisted Suicide and Euthanasia in the Medical Context". Since this particular issue has received so much public attention, the report has been made available electronically on the NYSDOH Web site. The report is posted in individual chapters.
http://www.health.state.ny.us/nysdoh/provider/death.htm