ABCD: Americans for Better Care of the Dying
ABCD is a non-profit public charity dedicated to social, professional,
and policy reform aimed to improve the care system for patients with
serious illness, and their families. ABCD is a coalition of citizens
and professionals united to ensure that public policy addresses the
needs of individuals and families coping with a fatal illness. ABCD
will provide an information network, encouraging and supporting public
involvement in correcting system deficiencies. ABCD seeks to harness
the strength of many concerned people to speak with a shared voice.
http://www.abcd-caring.com
American Pain Foundation
American Pain Foundation is an independent nonprofit organization serving
people with pain through information, education and advocacy, including
practical information about pain, resources/links and news
about federal/regulatory pain management issues.
www.painfoundation.org
American Society for the Advancement of Palliative
Care
ASAP Care is a personal effort to help expedite the reform of terminal
health care practice.
http://www.asap-care.com
Approaching Death
: Improving Care at the End of Life: Institute of Medicine, Division
of Health Care Services site.
http://www2.nas.edu/hcs/21da.html
The Association for Death Education and Counseling
http://www.adec.org
Bereavement and Hospice Support Netline
: Public service directory of bereavement support groups.
http://www.ubalt.edu/www/bereavement
Boston Globe: "Choosing A Good Death"
: Stories, resources, discussion forum, information about hospice, etc.
http://www.boston.com/globe/hospice.series.htm
Center to Improve Care of the Dying
The Center to Improve Care of the Dying (CICD) was founded in the belief
that life under the shadow of death can be rewarding, comfortable, and
meaningful for almost all persons--but achieving that goal requires
real change in the care system. CICD is a unique, interdisciplinary
team of committed individuals, engaged in research, public advocacy,
and education activities to improve the care of the dying and their
families.
http://www.gwu.edu/~cicd
Choice in Dying
Choice in Dying, the inventor of living wills in 1967, is dedicated
to fostering communication about complex end-of-life decisions. The
nonprofit organization provides advance directives, counsels patients
and families, trains professionals, advocates for improved laws, and
offers a range of publications and services.
http://www.echonyc.com/~choice/
Cochrane Collaboration
: Reviews of research evidence about the effects of health care.
http://hiru.mcmaster.ca/cochrane
Compassion in Dying
www.CompassionInDying.org
Death, Dying and Grief Resources
This web site represents a large and comprehensive collection of Internet
resources with a holistic perspective - one that would be helpful to
anyone seeking a wider vision and understanding of the death process.
http://www.katsden.com/webster/index.html
Death NET
DeathNET is an international archive specializing in all aspects of
death and dying with a sincere respect for every point of view. DeathNET
is the result of hundreds of hours of volunteer work, gathering together
a wide range of materials related to the legal, moral, medical, historical
and cultural aspects of human mortality.
http://www.rights.org/~deathnet/open.html
Dying Well
Defining Wellness through the 'End of Life': Resources for patients
and families facing life-limiting illness.
http://www.dyingwell.com/
Eldercare Web
Welcome to Eldercare Web, one of the oldest and most comprehensive eldercare
gateways on the World Wide Web! It's a collection of hundreds of reviewed
links to on-line information about health, financing, housing, aging,
and other issues related to the care of the frail elderly. This Web
is designed for caregivers, family, healthcare providers, and professional
advisors of elderly people with care needs.
http://www.elderweb.com/index.shtml
Elizabeth Kubler Ross, M.D., "On Death and
Dying"
Elisabeth Kubler-Ross, M.D. is one of a kind. She has been widely recognized
as one of the foremost authorities in the field of death, dying and
transition for over 20 years. It might well be said that she invented
this field as an area of legitimate discourse in the medical community.
Her now-classic first book, On Death and Dying, is today considered
the master text on the subject, and is required reading in most major
medical and nursing schools and graduate schools of psychiatry and theology.
http://www.doubleclickd.com/kubler.html
Growth House
: Monthly guide to Best of the Net sites for life-threatening illness
and bereavement.
http://www.growthhouse.org
Hemlock Society USA and PRO-USA
This is a critical time for all those who support the rights of the
terminally ill to choose death with dignity who support personal control
and autonomy in end-of-life decisions, and who believe that laws should
allow a terminally ill person the choice of medical assistance in hastening
their death. Through PRO-USA the Hemlock Society is attempting to achieve
legal change in every state.
http://www.hemlock.org/hemlock/index.html
Home Care Nurse
http://junior.apk.net/~nurse/
Hospice Foundation of America
: Information about hospices and hospice care.
http://www.hospicefoundation.org
Hospice Hands
: Articles, chatroom, links to related sites.
http://hospice-cares.com
Hospice Web
: Hospice links, information, search for hospice in your area.
http://www.teleport.com/~hospice/index.htm
Last Acts
Last Acts is a call-to-action campaign dedicated to improving end-of-life
care through the sharing of ideas and solutions by professional care
givers, institutions and individuals. The Last Acts Web site includes
news updates, a resource center and reports on palliative care, family
needs, service providers, education and training, financing and the
workplace.
http://www.lastacts.org
Medical College of Wisconsin Palliative Care Program
The Palliative Medicine Program is committed to improving care for the
dying in America through the development, implementation and dissemination
of innovative education and clinical care programs.
http://www.mcw.edu/pallmed/
National Association for Home Care:
http://www.nahc.org
National Conference of State Legislatures
: Legislation related to end-of-life issues in states.
http://www.ncsl.org/programs/pubs/endoflife.htm
Not Dead Yet
Americans with Disabilities don't want your pity or your lethal mercy.
We want freedom. We want LIFE.
http://acils.com/NotDeadYet/
Open Society Institute: Project on Death in America
: Death, dying, and grief resources. Topics include Hospice and Home
Care, Death in Arts/Literature and Stories, Cemeteries, Memorials and
Burials, and much more.
http://www.soros.org/death.html
Palliative Medicine Program
: Medical College of Wisconsin
http://www.mcw.edu/pallmed
Oversight Hearing:
"Assisted Suicide in the United States" -- April 29, 1996
World Wide Web homepage of the House Committee on the Judiciary. This
site will keep you informed about Judiciary Committee activities and
other important issues facing our nation.
http://www.house.gov/judiciary/2.htm
Pain, Palliative and Supportive Care:
The Palliative Medicine Program: Provides a variety of information and
educational materials about pain management and palliative care.
http://www.jr2.ox.uk/cochrane
"When Death is Sought
Assisted Suicide and Euthanasia in the Medical Context"
In May 1994, the New York State Task Force on Life and the Law published
a 217 page report titled "When Death Is Sought: Assisted Suicide
and Euthanasia in the Medical Context". Since this particular issue
has received so much public attention, the report has been made available
electronically on the NYSDOH Web site. The report is posted in individual
chapters.
http://www.health.state.ny.us/nysdoh/provider/death.htm