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Cohort
I
Cohort II
Cohort III
Cohort IV
Cohort
V
Cohort
VI
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The
Social Work Leadership Development Awards encourage innovative
research and training projects that reflect collaboration
between schools of social work and practice sites to advance
ongoing development of social work practice, education, and
training in the care of the dying. These awards promote
the visibility and prestige of social workers committed to
end-of-life care and enhance their effectiveness as academic
leaders, role models, and mentors for future generations of
social workers. |
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Cohort I
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Social Work
Leaders 2000-2001
(top, l to r) Jim Keresztury, Iris
Cohen, Gary L. Stein
(bottom, l to r) Mary Sormanti, Joan Beroff, Barbara Dane, Susan
Blacker |
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Joan Berzoff, Ed.D., M.S.W.
Smith College School
of Social Work
Northampton, MA
This project will develop a certificate program in end-of-life
care for post-master’s level social workers working with terminally
ill patients and their families in hospitals, nursing homes,
and hospices. The program will include development of
an innovative continuing education curriculum and textbook,
which will serve as an educational resource for social workers
throughout the United States.
jberzoff@email.smith.edu
Susan Blacker, M.S.W. L.C.S.W-C.
John Hopkins Oncology
Center
Baltimore, MD
This program will develop and offer an innovative training
course to meet the continuing education needs of social workers
practicing in the arena of end of life care and will create
a post-master’s training opportunity to encourage specialization.
It will also establish a statewide network of social workers
who will be trained to serve as role models in educating peers
about the psychosocial needs of individuals and families facing
life-threatening illness.
blackers@smh.toronto.on.ca
Iris Cohen, M.S.W., A.C.S.W.,
L.I.C.S.W.
Beth Israel Deaconess
Medical Center/Caregroup
Boston, MA
The Multidisciplinary Care Tools Program trains social workers
and medical staff together in multidisciplinary teamwork and
family conferencing skills. The program, which has training
components for graduate students and early post graduates
as well as advanced professionals, is designed to educate
social workers to be role models and leaders within interdisciplinary
teams and across treatment sites.
iriscf@ucla.edu
Barbara Dane, Ph.D.
New York University-Ehrenkranz
School of Social Work
New York, NY
This project aims to improve postgraduate training for area
social workers by convening 11 agency-based social work experts
to work with faculty members at the NYU-Ehrenkranz School
of Social Work on the design of a new palliative care curriculum.
The curriculum will pay particular attention to pain management
and ways of addressing spirituality and cross-cultural issues
in various service settings. BTD1@nyu.edu
James A. Keresztury, L.C.S.W., M.S.W.,
M.B.A.
Center for Health
Ethics and Law
Morgantown, WV
This project will establish a statewide advisory network, comprised of
social work educators and practitioners, to develop an extensive survey
tool that will examine the educational needs of social workers about end
of life issues. A new curriculum will be developed to address these gaps
in knowledge and will be implemented in graduate and postgraduate social
work education throughout the state.
Mary
Sormanti, M.S.W., Ph.D.
Columbia University
School of Social Work
New York, NY
This project involves the development, implementation, and
evaluation of telephone support groups for cancer patients
and their families during the dying process. Evaluation of
these groups will provide important information about their
efficacy as innovative and cost-effective interventions and
will serve as models for measurement of new technologies in
social work programs. ms778@columbia.edu
Gary L. Stein, M.S.W., J.D.
New Jersey Health
Decisions
Princeton, NJ
The Excellence in End of Life Care Fellowship for Social Workers
will develop, pilot, evaluate, and disseminate a model palliative
care curriculum for training social workers in working with
the elderly and people with disabilities. This collaborative
effort will create New Jersey’s first comprehensive initiative
to educate social work practitioners in end of life care.
healthdec@aol.com
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Cohort II
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Social Work
Leaders 2000-2002
(top, l to r) John F. Linder,
Margo Okazawa-Rey, Terry Altilio, Susan Taylor Brown; (bottom, l to
r) Katherine Walsh-Burke, Norma del Rio, Elizabeth Mayfield-Arnold,
June Simmons |
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Terry
Altilio, ACSW
Department of Pain Medicine
and Palliative Care
Beth Israel Health Care System
New York, NY
This project is a collaboration
between social work and the multidisciplinary staff of a major
Palliative Care Center to create a six month social work fellowship
program. A list serve will be developed and maintained as
well as specific teaching modules on topics such as pain and
symptom management and principles of palliative and end-of-life
care for social work that can be accessed through the internet.
taltilio@bethisraelny.org
Elizabeth
Mayfield Arnold, MSW, PhD
School
of Social Work
The
University of North Carolina at Chapel Hill
Chapel
Hill, NC
Duke
Institute on Care at the End of Life
Durham,
NC
This
research is a collaborative project between the school of
Social Work at UNC-CH and Hospice for the Carolinas. Dr. Arnold
will conduct a survey of hospice and health care social workers
to examine social workers' attitudes, knowledge, and values
concerning assisted dying. Findings will be used to
develop training to improve social work intervention with
those at the end of life who have unmet needs and/or are considering
hastening their death. emarnold@email.unc.edu
John
F. Linder, LCSW
UC Davis Cancer
Center
Sacramento, CA
Through
development of a state wide coalition of Schools of
Social Work and Schools of Theology and related field training
agencies, this project will develop a highly interactive graduate
level “end-of-life care” course that will be offered to social
work, divinity and religious studies students at California
State University, Sacramento, and at the Graduate Theological
Union (GTU)/UC Berkeley, in academic year 2001/02. john.linder@ucdmc.ucdavis.edu
Margo
Okazawa-Rey, EdD and
Norma del Rio, MSW
Institute for Multicultural
Research and Social Work Practice
San Francisco State
University
San Francisco,
CA
This
project combines a grass roots program in northern California
for minority and disadvantaged terminally ill individuals
with the San Francisco State Multicultural Institute. Project
goals are to 1) develop cross-cultural/cross ethnic assessment
guidelines for the terminally ill and bereaved; 2) design
and implement a curriculum for graduate social work students
that integrates end-of-life care and multiculturalism and
3) test the application of available measures of professional
cultural competency developed for other areas to end-of-life
care.
mor@sfsu.edu
nidelrio@aol.com
W.
June Simmons, MSW
Partners
in Care Foundation
Burbank, CA
A
regional coalition of agencies and schools, developed by the
Geriatric Social Work Education Consortium and the Partners
in Care Foundation is creating a new model of integrated end-of-life
care with older adults in social work field and academic training
in California. This project will influence social work EOL
care national graduate education programming through shaping
optimal practice standards and developing a base for education
of future social work leadership in EOL care.
jsimmons@picf.org
Susan
Taylor-Brown, MPH, ACSW, PhD
Greater
Rochester Collaborative
MSW Program
Nazareth College-
SUNY College at Brockport
Pittsford, NY
The
Greater Rochester Collaborative MSW Program, Community Health
Network (a medical facility for HIV infected adults) and the
Double “H” Ranch (a camp funded by the Paul Newman Foundation
for individuals with chronic illness) will form a consortium
known as Family Unity. A rich series of learning opportunities
delivered at the outpatient treatment facility, Community
Health Network, and the Family Unity Camp will improve social
work students', practitioners' and educators' ability to work
with families experiencing death and loss related to HIV/AIDS.
Learning will be enhanced through participation in an intensive
camp experience with these families. stbrown@social.syr.edu
Katherine
Walsh-Burke, MSW, PhD
Association of Oncology
Social Work
Springfield College
School of Social Work
Springfield,
MA
Dr.
Katherine Walsh-Burke will develop an internet-based continuing
education program for social
workers
affiliated with the 1000 member Association of Oncology Social
Work, Hospice Social Workers and related social work organizations.
The program will offer courses that include essential theories
and skills for social workers, program administrators and
supervisors engaged in providing end-of-life care.
Kathywb4@aol.com
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Cohort III
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Social Work
Leaders
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David
A. Cherin, MSW, PhD
University of Washington
School of Social Work,
Seattle, WA
The University of Washington's School
of
Social Work End-of-Life Care Knowledge Institute
In this intensive summer research
workshop program for social workers and other health professionals,
participants will design research and demonstration projects
to be carried out in their home institutions. Students will
develop a strong conceptual and applied background in palliative
care services, empowering them to assume a strong institutional
role in the delivery of end-of-life care practice models.
cherind@u.washington.edu
Ellen
L Csikai, MSW, MPH PhD
Mary Raymer, MSW, ACSW
Stephen
F. Austin State University
Nacogdoches, TX
National Hospice and Palliative Care Organization
Williamsburg, MI
The Social Work End-of-Life Care Educational
Program (SWEEP): A National Initiative
This project will use a
national survey of health care workers in various settings to
assess current educational preparation in end-of-life care,
and create a “train the trainers” program to improve social
work education. ecsikai@sfasu.edu
raymermsw@aol.com
Judith Dobrof, DSW
The Mount Sinai School of Medicine, New York, NY
Caregivers and Professionals Partnership:
Assessing a Structured Support Program
Given
that 71% of caregivers nationally report that they are caring
for someone with a long-term or chronic illness, providing
support to family members throughout the course of illness
– from diagnosis to the bereavement phase – is essential.
This project will assess the impact of the Caregivers and
Professionals Partnership (CAPP), a structured support program
for family caregivers of chronically, seriously and terminally-ill
adults. judy.dobrof@mountsinai.org
Betty
J. Kramer, PhD
University of Wisconsin-Madison
School of Social Work
Strengthening Social Work Education to
Improve End-of-Life Care
Although
social workers have important practice roles supporting families
and individuals coping with terminal illness, grief, loss
and bereavement in a variety of settings, educational gaps
often leave them ill-prepared to competently fulfill these
roles. This project will develop end-of-life content guidelines
for the social work profession, building upon the current
standards used by medicine and nursing; and use these guidelines
to conduct a critical review of the most frequently used textbooks
in social work education. ejkramer@facstaff.wisc.edu
Shirley
Otis-Green, MSW, LCSW, ACSW
City of Hope National
Medical Center, Duarte, CA
Proyecto de Transiciones:
Enhancing End of Life and Bereavement Support Services for
Latinos within a Cancer Center Setting
Despite the high percentage
of Latinos who reside in Los Angeles County, there are presently
no integrated, Spanish-speaking end of life and bereavement
support services. This demonstration project will develop
a community partnership model appropriate for use in cancer
centers nationwide.
sotis-green@coh.org
Cancer Care, Inc., New York,
NY
The End-of-Life Internet
Forum
This teaching model will
use the Internet to provide focused training in end-of-life
care to master’s level graduate students and social work
professionals.
asutton@cancercare.org
yvette@painfoundation.org
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Cohort
IV
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Social Work
Leaders
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Mercedes
Bern-Klug, MSW, MA
Associate Director,Center
on Aging
University of Kansas Medical Center
Through
a survey of 60 nursing home residents and their families,
this project will document the psychosocial concerns of
dying residents and their families. Further, a series of
focus groups with social workers providing services to those
residents and observations of their role will clarify the
social work role as it is currently practiced, its strengths,
limitations, and needed development in order to improve
end-of-life care in U.S. nursing homes. This information
will contribute to the current initiative to develop social
work standards and best practices in that setting. mbernklu@kumc.edu
Sheila R. Enders, MSW
Community Health Program Manager
Department of Internal Medicine
UC Davis Medical Center
Through
the development of a collaborative relationship with the
California Department of Corrections, Johns Hopkins Oncology
Center, UC Davis Health System, and Pennsylvania State University,
this project will develop a handbook for advanced care planning
and effective decision-making in selected populations with
low literacy levels, mild learning disabilities, or mild
cognitive deficits. Information from the handbook will be
used to develop didactic and interactive training to teach
skills in facilitating end-of-life discussions and decision-making
among those vulnerable populations for graduate courses
for social workers and other health professionals. srenders@ucdavis.edu
Richard
B. Francoeur, PhD
Assistant Professor
School of Social Work
Columbia University
Assistant
Professor, Columbia University School of Social Work, New
York, NY Disease progression and inadequate relief of pain
and other symptoms are especially acute in economically
disadvantaged minority communities. As a consequence, the
health care system is perceived to lack credibility, and
palliative care is viewed with suspicion as providing inferior
care. After accounting for diagnosis and psychosocial factors,
this research will study the impact of financial and material
burden on the psychological well being, difficulties with
pain medication, and confidence in achieving pain and symptom
relief in a population of African-American and Latino patients
who are receiving palliative care in Harlem, NY. rf201@columbia.edu
Barbara
L. Jones, MSW, CSW
Pediatric Social Worker
Division of Pediatric Hematology/Oncology
Albany Medical Center, MC24
Barbara
Jones will identify current practices and training of social
workers who provide end-of-life care for children diagnosed
with cancer in order to meet the psychosocial needs of dying
children and their families. Using qualitative and quantitative
methods, Jones will survey 260 pediatric oncology social
works and conduct focus groups for an in-depth understanding
of the role of social work in pediatric palliative care
and findings will be used to enhance the effectiveness and
confidence of social workers engaged in end-of-life care
for children with cancer. Jones, who has recently been appointed
to the Steering Committee of the National Alliance for Children
with Life Threatening Conditions, plans to present the results
of quantitative and qualitative analysis of the surveys
received at three end-of-life and Palliative Care conferences
this spring. jonesb@mail.amc.edu
Jane
Lindberg, LCSW
Director of Psychosocial Services
Hinds Hospice
This project
reflects collaboration between a rural hospice and an MSW
program at California State University in Fresno, CA. The
project will survey the adequacy and accessibility of bereavement
services for a rural poor and Hispanic farm labor community
in four representative communities in Fresno County, located
in the San Joaquin Valley of central California: Kerman,
Mendota, Reedley, and Selma. Based on survey results, a
model bereavement program will be developed that trains
local social workers, clergy and health care providers who
may already be connected to bereaved residents, in order
to teach the skills for individual and group bereavement
services with this population. This model program will be
evaluated and disseminated through infusion into the Masters
of Social Work Program Curriculum and through continuing
education models for rural health and human services professionals.
jane@hindshospice.com
Susan
A. Murty, PhD
Associate
Professor
University
of Iowa School of Social Work
This project will evaluate
a model of integrated field and classroom social work curriculum
on "Developing Social Work Leadership in End-of-Life Services
in Rural Communities" within the Iowa State University School
of Social Work. Over the two-year period, 12 MSW students
will be trained as leaders in this specialty. Models of culturally
competent end-of-life care, palliative care, and bereavement
services will be evaluated with an emphasis on rural communities
and rural Latino populations. Those models of care will continue
to be taught within the MSW program and disseminated nationally.
susan-murty@uiowa.edu
Bruce
A. Paradis, PhD
Professor
Graduate School of Social Work
Salem State College
This
project will be the first to develop and evaluate a formal
concentration on older adults and end-of-life care across
the life cycle within a school of social work in the United
States. Participants are second-year MSW students at the
Salem State College School of Social Work, who simultaneously
complete a 1,000-hour field placement in a setting that
provides end-of-life care services and a year-long integrative
seminar designed to consolidate advanced clinical and organizational
skills and to explore innovative models for the delivery
of psychosocial service to the dying. The completion of
a research project on end-of-life care and dissemination
through a public forum are also required.
bruce.paradis@salem.mass.edu
Sherri
Weisenfluh, LCSW
Associate Vice President for Counseling
Hospice of the Bluegrass
This
project will create The Kentucky Project, a statewide partnership
of end-of-life and palliative care educators and service
providers in rural Appalachian communities. Through this
partnership a social work manual for students and practitioners
will be developed and disseminated to enhance provider competencies.
srenders@ucdavis.edu
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Cohort V
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Social Work
Leaders
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Elizabeth
Chaitin, MSSW, MA, DHCE
Director, Medical Ethics and Palliative Care Services UPMC
Shadyside Hospital
This
project will test the efficacy of an interdisciplinary education
and training program for developing palliative care staff
at non-university affiliated UPMC Health System hospitals
as well as community hospitals affiliated with the Consortium
Ethics Program of the University of Pittsburgh. The goal is
to form highly functioning interdisciplinary care teams in
each hospital composed of social workers, nurses, and physicians,
specialists with significant exposure to end of life care.
chaitinek@msx.upmc.edu
Bonnie
Shultz, LICSW
SocialWorker, PalliativeCare
Consulting Service
Children's Hospital
Foundation
Families of pediatric patients
and professionals often refuse potentially helpful end-of-life
services because ofthe emotional message of "giving up" that
hospice implies to them. Bonnie Shultz created a model of communication
and case coordination beginning early in the course of a child's
potentially fatal illness, which has been well accepted by families
and has shown to improve their decision making and planning
at the end of life. In her project, that model, previously tested
and supported by Robert Wood Johnson, will form the basis of
a pediatric palliative care curriculum to be taught at the University
of Washington School of Social Work, at local hospice agencies,
and will be disseminated through a series of state and national
conferences. bshult@chmc.org
Vicki
M. Runnion, MSSW
Terry
Wolfer, PhD
Professors
University of South
Carolina College of Social Work
Terry
Wolfer and Vicki Runnion will use a standardized process to
develop a set of decision cases on death, dying, and bereavement
for teaching social work practice in palliative care. The 24
cases will be published in book form to be disseminated through
the Council on Social Work Education as well as individually
via the Internet. The cases will portray the actual experiences
of social workers as they serve clients facing death or bereavement
in a wide range of practice settings and allow students to analyze
solutions to dilemmas that arise. VMRunnio@gwm.sc.edu
and terry.wolfer@sc.edu
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Cohort
VI
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Social Work
Leaders
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David
Browning, MSW
Senior
Research Associate,
Initiative
for Pediatric Palliative Care,
Center
for Applied Ethics and Professional Practice
Newton,
MA
David
Browning will develop a curriculum on child and family centered
end-of-life care for master's level social workers. The curriculum
will provide social workers with the theoretical foundation, clinical
expertise, and resources to provide optimal pediatric palliative
care. The program includes facilitator's guides for educating
social workers in the following six areas: engaging with children
and families; relieving pain and other symptoms; improving communication
and strengthening relationships; responding to suffering and bereavement;
sharing decision-making; and establishing continuity of care.
dbrowning@edc.org
Karen
Bullock, PhD
Assistant Professor
University
of Connecticut School of Social Work
West Hartford, CT
In
collaboration with the University of Connecticut's Center for
Instructional Media and Technology, the End-of-Life and Palliative
Care Educational Resource Center, and other related resource programs,
Karen Bullock will create an online Resource Enrichment Center
Project, enabling the School of Social Work to provide continuing
education for practitioners and graduate students. This clearing
house will include a resource enrichment centre for social work
in end-of-life care, a research symposium, an interactive web
site, distance and distributive education, online course enhancement,
online discussions with practitioners and students, and an online
library.
karen.bullock@uconn.edu
Nancy
Cincotta, MSW Presceptor
Department of Social Work Services
Mt. Sinai Medical Center, New York, NY
In collaboration with the Association of Pediatric Oncology Social
Workers and the Center to Advance Palliative Care, and the SWLDA
Program, Nancy Cincotta will organize a national network of social
work experts in pediatric end-of-life care. Professionals and
parents will partner to identify developmentally sensitive interventions,
unique challenges, and opportunities to improve pediatric end-of-life
care. Cincotta will create a listserv to serve as a virtual community
for discussion, problem solving, resource sharing, and consultation
for pediatric end-of-life care professionals.
nancy.cincotta@mountsinai.org
Elizabeth
Clark, PhD, ACSW
Executive
Director, National Association of Social Workers, Washington,
DC
Social workers deal with end-of-life care situations in the broadest
range of agencies and institutions of any mental health professional.
This project will develop practice and policy guidelines in end-of-life
and palliative care for the 150,000 members of the National Association
of Social Workers (NASW). Ultimately leading to specialty certification,
these guidelines will be developed in collaboration with Susan
Blacker and the Social Work Consortium in End-of-Life Care that
was formed in March of 2002 at the Social Work Summit on End-of-Life
and Palliative Care at Duke University and will be disseminated
through the 56 chapters of NASW nation wide and abroad to improve
social work competencies in end-of-life and palliative care. bclark@naswdc.org
Nancy
Contro, LCSW
Coordinator
of Education and Research
Department
of Palliative Care
Lucile
Packard Children's Hospital, Palo Alto, CA
Most
practitioners acknowledge that the most effective way to care
for children is a family centered approach; however, within the
realm of pediatric palliative care, there is almost no literature
to guide practitioners. Even more lacking is literature examining
the experiences and needs of children and families from non-Anglo
cultures. This research will improve the understanding of the
unique experience of bereaved Mexican-American families whose
children were treated at Packard Children's Hospital. In collaboration
with Dr. Betty Davies, Professor of Nursing at UCSF, they will
explore specific responses to the trauma of child death, family
communication patterns, and their experiences of their own care
giving and those of professional and other caregivers.
nancy.contro@medcenter.stanford.edu
Rita
Ledesma, PhD, LCSW
Associate
Professor, Department of Social Work,
California
State University, Los Angeles, CA
Rita
Ledesma, a social work leader of mixed Latina and American Indian
background, will examine the impact of loss and bereavement in
the American Indian and Alaska Native communities of the greater
Los Angeles region. She will use qualitative methods with two
expert samples: 1) American Indians and Alaska Natives who reside
in the community; 2) health and human services providers who work
within the American Indian and Alaska Native community. She will
establish a council of consultants to review the research protocol
and data. Her findings will be used to develop training materials
and curricula to be disseminated for practicing social workers,
social work students at California State University
and allied health professionals nation-wide. rledesma@cslanet.calstatela.edu
Aloen
Townsend, PhD
Associate
Professor,
Mandel School of Applied Social Services,
Case
Western Reserve University, Cleveland, OH
A
critical gap in research and practice in end-of life care is the
lack of a clinically relevant and scientifically sound tool for
assessing family caregiver strain in end-of-life care. Through
collaboration with the Hospice of the Western Reserve and the
Mandel School of Applied Social Sciences, Aloen Townsend aims
to develop and test such a tool in order to improve end-of-life
care for patients. Also a faculty mentor for the Harford Faculty
Scholars Program, this social work leader brings expertise in
gerontology and research methodology as she continues to develop
expertise in end-of-life care. Working together with social work
leader Betty Kramer, Townsend will organize a national education
and research initiative on care giving.
ast7@po.cwru.edu
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